Patient Organisations

Navigating the challenging world of rheumatic diseases can be daunting and confusing.
We aim to update this patient page with valuable resources for education, support, and financial/legal assistance for rheumatology patients and their caregivers to find the information they need about rheumatic diseases and conditions.
Please let us know if you have suggestions to add to these resources, or links you have found useful!

Organisations

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The Rheumatology Initiative

  1. The Rheumatology initiative

P.O. Box TN 1147, Teshie- Nungua Accra- Ghana

Tel: +233 244 672343

Email: info@ trighana.org, trighana@gmail.com

Oyemam Autoimmune Foundation

Email: oyemamfoundation@gmail.com, info@oyemam.org

P. O. Box CT 349 Cantonments, Accra Ghana – West Africa

Tel: +233 546 196 276

Social media handles: https://www.instagram.com/oyemamautoimmune/

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Lupus Awareness Nigeria (Mablevi Lupus Foundation)

Email: mablevilupusfoundation@yahoo.com

Call: +234 818 501 8688

Social media: Lupus Awareness Foundation

Lupus Aid Foundation Nigeria

Social media IG: lupus_aid_foundation

The LabaLaba Foundation

Call: +234 818 199 3322

 Email: info@lupusnigeria.org

Social media IG: thelabalabafoundation

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Paediatric AFLAR

Email: info@paflar.org

Tel: +254 722 841 719

Social media: fb; Paflar Africa Afrique

Lupus Foundation of Africa Nairobi, Kenya

Email: info@lupusfa.org

Phone: +254 729 877399

Social media handle IG: LUPUS Foundation of Africa

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Association of Rheumatology Concerns

Call: +23052554094

Email: arcassociation.mu@gmail.com

Social media FB: Association of Rheumatology concerns

Lupus Alert

Email: lupusalert@hotmail.com

Call: +(230) 4648276 +(230) 4659899 +(230) 59168574

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 Lupus Tanzania

Email: admin@lupustz.org

Social media IG: lupustz

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Lupus Initiative Uganda

Call: +256 785 427950

Email: info@lupus-initiativeuganda.org

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Egyptian Society for Lupus

Social media Fb: facebook.com/Egyptian-Society-For-Lupus-256097624595448/

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Andrea’s Gift Foundation Lupus Support

Arthritis Foundation of South Africa

Tel: +27 21 425 2344, +27 86 130 3030

Email: info@arthritis.org.za

Social media: ig; Arthritissouthafrica

Arthritis Kids South Africa

Tel: +27 64 901 2084

IG: arthritiskidssa

Email: Admin@arthritiskids.co.za

Axial Spondyloarthritis Association of South Africa, ASASA

Email: info@axspasa.org.za

Social media: IG: axspasouthafrica

Lupus South Africa

Email: info@lupussa.co.za

Social media IG: lupus_sa_npo

South Africa Rheumatism and Arthritis Association, SARAA

Tel: +27 63 680 2551, +27 11 933 9377

Email: admin@saraa.co.za, exec@saraa.co.za

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